Tuesday, July 31, 2012

Edward surgery went ok

Well Edward's surgery went fine, recovery well not so much. First they had problems waking him up then he was not sating well with his SO2, alarms keep going off, Melissa and I started to have all kinds of flashbacks to the NICU. I think in the hour it took him to finally wake up I had every emotion I had in 109 days in the NICU. Not to freak anyone out but he was in recovery for a total of about, you guess it 109 minutes.... Isn't that freaky...
Well after everything was said and done, Edward woke up his SO2 improved and we headed home, and he seems to be doing fine.
So that is our very very very long day. I hope you can understand the grammar, I am way too tired to go back and retread it...
Below you will see the TV screen we watched while Edward was in surgery. It told you what was going on. He is patient number 7068...
Goodnight

Edward is out of surgery he did great

Edward in surgery

Edward is in surgery will update when we know more

Monday, July 30, 2012

Edward goes to a birthday party

Well today we headed down to Valencia for a birthday party after church. It was in a scooter jump something, can't remember old age. Anyway there were 3-4 jump houses and slides for kids to go on, so we took Edward in one of them and had him go down a very small slide by himself. We took a picture which I will try and get uploaded tomorrow.
We have lots to do as we leave for LA tomorrow afternoon in preparations for Edward's outpatient surgery on the 31st. There may be no blog tomorrow night but I will update the blog on Tuesday as a soon as we know how Edward made out. Keep Edward in your thoughts and prayers on Tuesday... Goodnight

Sunday, July 29, 2012

Play time with Luke

Well Edward got a chance to play with his BFF Luke today. Edward just sat there and watched Luke and tired to figure out how to do what Luke was doing. (Drawing, running etc) but Edward just could not figure how to move his little body.
Tomorrow Edward is off to a birthday party in Valencia before we leave for his "minor" surgery Monday afternoon. Big day tomorrow so goodnight blog world

Friday, July 27, 2012

Edwards first pool party

Well Edward went to his first pool party tonight and of course he loved it. Boy does he ever love the water... See picture below.
Preparations continue for Edward's first birthday blow out. I am working on his one year movie and Melissa is making lists of everything from guests to food. So if you have not RSVP to mom@edwardday.com please do do ASAP.

Thursday, July 26, 2012

We are home

Well we made it home safely! What a great family vacation we had. We are all unpacked and are ready for our next adventure... Edwards surgery next week at LA Children's! Below you will see the picture we had drawn of Edward as a Lego Jedi Knight!!!
Don't forget to look at all the pictures of Edward's journey to legoland on edwardday.com. And click on the Legoland 2012 page. Enjoy!!

Wednesday, July 25, 2012

Legoland Day 2

What a great time we had today. Edward loved the water park as he seems to always, whenever we take him to drytown. We walked around Legoland some more after the water park, just taking everything one last time, as we leave for home tomorrow :(
Edward really seemed to enjoy himself, and I am not just saying that. He really looked around at everything and he loved going on the Lego Train! We most of gone on that train like 4-5 times total.
LegoLand Day 2 pictures have been uploaded to the lego 2012 page at edwardday.com. so go check them out. Below is a sample.



Tuesday, July 24, 2012

Legoland Day 1

We had a blast at Legoland today... Edward just could not stop looking at everything.. He really seemed to love it. I have posted all the pictures from day one at legoland on edwardday.com           (Link below), and I created a new page for just Legoland, so go check it out. I also added a video of Edward and mommy riding the train together... We are very very very tired. Need to go get some sleep, Day TWO TOMORROW!!!!
http://edwardday.com/Edward_Day/Legoland_2012.html




Monday, July 23, 2012

The secret location is secret no more

No long blog tonight just look at the picture. I have waited almost 40 years but we are finally here!!! Look for lots of pictures tomorrow night from the "secret location"

We have arrived

We have arrived at our secret location. Here is the view from our room

Sunday, July 22, 2012

Rest day

Well we got ready to goto ?????? Today. We have a big day tomorrow so look for updates on this blog all say tomorrow.

Saturday, July 21, 2012

Edward goes up to NICU for a visit

Well Edward went back to the NICU for another visit. This time he went over to see Dr. Lipsky and to give her a invitation to his first birthday party on August 15th.....
Well tomorrow we pack and head off to our secret location.
Don't forget to check out the photo page on edwardday.com, I uploaded over 100 new photos. I also uploaded his one year old pictures and s video of Edward playing with mommy in the pool do go check it out....
Edward headed up in the hills to visit some good friends of ours in Llano CA. It was quite a drive but the view was priceless, see picture below. Tomorrow is a rest day as we prepare to goto our secret location next week.......







Thursday, July 19, 2012

Birthday pictures and time to drop off a present

Today we took Edward to the mall to have his 12 month pictures taken. Boy did they ever come out great, check out a sample below! I will be uploading all the pictures once we get the high quality copies at the end of the month but here is a preview!
Edward also took a thank you present over to our good friend Barabara Leonard to say thank you for the wonderful tour of the LA zoo. It was great to see here, but Edward also got to meet her son and his wife who were just returning from a trip to Alberto Canada and Edward also got to meet Barabara Leonard's mom who came right out to see him once she heard he was there visiting. She has heard do much about him from her daughter that she had to see him first hand. Check out the picture below! Good night, tomorrow we are off to see more friends do look for more details on that in tomorrow nights blog!

Wednesday, July 18, 2012

Off to grandmas house

Well off Edward went to see Grandma Campbell today in his ...... Wagon, see picture below.
Then he hung out with his mom and dad this afternoon and this evening his auntie Pat came over to baby sit so Melissa and I could go over to our church for a class to become members.
After that we returned home, packed up and went over to see the NICU evening staff. Were they ever happy to see him. After that Edward came home, ate his cereal and finally got to bed at about 9:30, way too late for him, so hopefully he sleeps in tomorrow. You can see all the pictures of Edward with his grsndna on edwarddday.com's photo page, go check them out!!!
Anyway goodnight blog world
xoxo Edward...

Tuesday, July 17, 2012

Edward visits a new house

Today we took Edward over to see our good friend Diana Nagy, who is Edward's Godmother. See came all the way down to Cedar Sinai last September to be with us emotionally as we thought we might lose Edward!! She stayed with us and our pastor all day and of course was the only witness when Edward was baptized just moments before he had his heart surgery, which could have gone either way, but fortunately for us it went great!!
Edward got to play with lots of new toys over at his godmother's house. He even got to try out her spa.. See pictures below. Tomorrow is a restful day as we get prepared for our very special trip next week.. Good night everyone.

Rest day and a lot of cleaning

Well this AM we said goodbye to Aunt Bette and then spent the rest of the day cleaning washing sheets and preparing for our next visitors in August.
I won't ramble on tonight as nothing really new happened. Make sure you look at all the new pictures I posted on edwardday.com yesterday
Goodnight

Sunday, July 15, 2012

11 months old and web site updated

Well Edward turned 11 months old today, what a wild ride the last 11 plus months have been. We had a small celebration tonight with Edward's Great Aunt Bette, and Grandma Campbell as his great Aunt Bette will not be here to celebrate Edward's first birthday... I have uploaded pictures of the celebration to the photo page at edwardday.com so please go check them out. I also finally uploaded the pictures from the water park and trip to the NICU, so lots of new pictures to look at!! Over 100!!!!
Tomorrow we say goodbye to Aunt Bette, clean the house and take a break because in one weeks we are headed to a very special destination , but you will have to wait until next week to find out where Edward is headed next...

Saturday, July 14, 2012

Water Park Finally!!

The weather finally got better (no humidity) so off to the water park we went! I think Edward likes the water park more and more each time we go. He just loves to sit on your lap and kick his feet and move his arms and splash!
Ok quick story: today at the water park Edward took a big nap, no big surprise their, however when he woke up I took him out of his stroller and but him on the grass behind the cabana that we rented and..... guess who decided it was time to start sitting up? Edward!!! He can actually sit up by himself for 5-10 minutes with no help, then he gets tired and wants to lay on you.... Next step I guess is crawling... Who knows maybe he will be crawling by his birthday!!!! Who knows!!!!
Check out some pictures of us at the water park below , the rest I will be uploading to the website tomorrow night along with the NICU visitation pictures that I forgot to upload today!!! Sorry about that !!! Good night everyone

No water park again!!

Well no water park again. The weather out here reminds of the weather in NY in the summer! What happen to our dry summer! So instead of going to the water park we took Edward along with his jungle swing over to the NICU. We were given a second swing by a friend of a friend at work and no longer need it and we know that the NICU could really use it, so we donated it! Everyone was so excited to see him, he has not been over there since May 24th, so it has been awhile! Below you will see some of the pictures from our NICU visit! The rest I will be uploading to edwardday.com tomorrow.
Tomorrow we will try again to goto the water park, hopefully the humidity goes away!!!

Friday, July 13, 2012

No Water Park Today

Well no water park today! It was actual too humid to go. The weather reminded why I don't miss the weather back east in the summer!
Edward just spent a relaxing day shipping and resting. His great aunt Bette took him to build a bear and helped him build a bear! What fun! Edward also received a box today from his cousins in Connecticut. All uconn apparel, what great taste they have!
Well got to rest up, we hope to goto the water park on Friday!