Happy thanksgiving

Well happy thanksgiving from Edward and his mom and dad. We had a great dinner and Edward even ate some . He seemed to really enjoy the potatoes and stuffing. I took a lot of pictures of Edward in front of our Xmas tree that we put up today. I will off load them from the camera and post them on jus web site sometime tomorrow. Below is a picture

of just the tree. Time to get some sleep. Again happy thanksgiving to everyone. 

Mommy's little helper

Well Melissa found a new baking helper, see pictures below. Edward even has his own apron to wear. He sure loved helping mommy. He is such a great helper.
Well tomorrow we are off to Cedar Sinai Medical Center for Edward's 24 month developmental check up with Dr. Kutton. Then we should be done going to Cedars except for the yearly NICU reunion. Well we have another long day ahead of us. So goodnight.

ABR test cancelled

Test cancelled long story 

Edward is fine, going home

Christmas Pictures are here

Well today we took Edward to JC Penney's for his 2013 xmas pictures. Check out a sample below and if you want to see them all click the link below to visit the photo album on his website.
Tomorrow we head off to LA with Edward for the completion  of his ABR hearing test. After this we are hoping to get referred to a hearing aid place so that we can get Edward hearing all tones. Wish us luck.. Our doctor said it was fine for Edward to go and have this test done even after all the recent problems he has had. We of course would not be going if his doctor did not tell us it was ok. WE WOULD NEVER DO ANYTHING TO JEOPARDIZE EDWARD'S HEALTH.


http://edwardday.com/Edward_Day/Edward_Pictures/Pages/Edward_Xmas_Picture_2013.html

Edward doing great

Well Edward is doing great. Day 2 of no oxygen and no signs of turning back. Edward even got to hang out with Selena (one of my former students who is a senior in high school and his baby sitter) so Melissa and I could do some "xmas shopping". We didn't want to take Edward out yet, since he just got off oxygen, and we would NEVER DO ANYTHING TO JEOPARDIZE EDWARD... That is for sure.. Well nothing else new here... I have up dated his photo page on edwardday.com, with some new picture from November, including pictures of him from inside the hospital.. Link is below.. Enjoy

http://edwardday.com/Edward_Day/Edward_Pictures/Pages/Edward_Pictures_November_2013.html

Oxygen update

Edward is off oxygen !!!!!

Edward doing great

Well Edward is doing great. We go back to the doctors tomorrow and Inam hopeful that we might get rid of this 40 ft oxygen line Edward is on, but we will see. I will post the results of the oxygen test on this blog so check it tomorrow around 1pm ET or 10am PT for the verdict . Well that is if, big day tomorrow, wish us luck 

Oxygen test dailed

Well Edward failed the oxygen test today so we are still on oxygen. We go back Friday for attempt number 2, so please keep your fingers crossed. 

Also Edward's therapist today told us that he really dies need PT anymore and once he did the shape sorter she said he probably doesn't need OT either. The only thing he still needs is speak. 

Well that is the update. 

Home

Well after a really really long weekend, WE ARE HOME. Edward and still on oxygen and will be to at least Tuesday when we go back to the doctors. Melissa and I have been really upset about Edward being hospitalized again . 

Below is a picture of mommy and Edward leaving the hospital 

Goodnight 

Health update

Well in case you have not heard, Edward has been admitted to AV hospital with Pneumonia. We are starting medication and the doctor is hopeful. We just are really scared as you hear of people all the time that die from pneumonia. We just have to stay positive. I will try and keep this blog update at least twice a day with health updates. So stay tuned to this blog for updates...

Update

Well Edward had pink eye but the eye drops the doctor gave him seem to be working really well. He seems to be getting his desire to eat back slowly. I myself am starting to get a soar throat so I wonder if I have  Edward to thank for that. Edward is out of daycare all week, sini took off Tuesfay and Wednesday and mommy took off today sonIncouod go check on my kids. I am taking tomorrow off again and hope to have Edward back in daycare next week. Well that is your health update for tonight . Goodnight everyone 

Here we go again

Ok here we go again, Edward is sick again, first he had a fever last night and then he has pink eye now we think. I will be taking another day off from school to take him to see his doctor. Hopefully we can get back to normal health soon with Edward, as the holidays are not too far away..

I hope you enjoyed all the pictures from disneyland. We are hoping to go back for Edward's two year anniversary from leaving the NICU, but it will depend, of course, on how healthy he is. I do think that the hearing test we have scheduled for the Tuesday before Thanksgiving will know have to get moved, due to the health requirements fro it. The test requires Edward to be put to sleep, it is called a ABR hearing test, google it for more details....


Will wish us luck and pray for Edward to get back to "normal" health soon....

Let the Family Vacation begin

Well we have arrived at our final destination, DISNEYLAND.. Go check out Edward's photo page and click on the November 2013 album or just click the link below. Today we went to California Adventure to see if we could find anything for his Car's room. We did find a few small things, but the best thing we found was in a store at Downtown Disney, the store is called, RideMakerz, it is like Build a bear for boys. You pick out your car frame and your tires... and so on.. Well  we made him a Lighting McQueen from Car's. He just loves his new push car, it even makes noise.

Well time to get to bed, lots to do tomorrow, will have lots more pictures to post tomorrow night, so be sure to check his photo page tomorrow night...

http://edwardday.com/Edward_Day/Edward_Pictures/Pages/Edward_Pictures_November_2013.html

Week almost over

Well the week is almost over, Edward is sure ready to go on his special trip this weekend. Make sure you check his website to see where we will be head.. Check out how happy his was that it was THURSDAY.... HURRAY he said.....

New food

Edward discovered a new food tonight. One of my favorites... Lasagna . See picture below . Edward seems to be back to his normal mommy loving self. Whenever he sees mommy, well let's just say that Melissa has gotten use to carrying around an extra 25 pounds. Edward is sure a mommy's boy..... 

Back to "Normal" tomorrow

Well Edward seems like his self again, so back to daycare tomorrow and I will return to work. I sure have enjoyed spending all this time with Edward. Today Edward and I played a lot in the morning, then he took a 3 plus hour nap. Then we ate lunch and went for a 1 mile walk with his red car he loves so much. Oh boy does he ever love his red car. Below you will see of Edward playing out back, He had a ball. Well time to get to bed, an early start tomorrow. Oh stayed tuned to edwardday.com and we take a special, "family trip" this weekend. I will be posting pictures of out adventures daily to edwardday.com. Also look for a "new look" coming soon for the holiday season..

Edward update

Doing alittle better today. Still running a fever but it goes away quick with medicine. He is out of daycare at least Monday and maybe Tuesday plus more if he does not improve to 100 percent. Oh well no big deal to me, I get to spend lots of quality time with Edward. We have a blast during the day and sure make a mess. Right now Edward is sleeping next to me in his Star Wars pajamas. Thank again Aunt Vhris for the cool PJs. 

Update

Edward doing much better. Infection seems to be gone. We are going to keep him out of daycare on Monday and they hopefully we can get back to "normal " on Tuesday . The doctor did give us a new breathing treatment medicine to try. ( it is suppose to help prevent this from happening, so hopefully we can get through the winter without oxygen!) 

Edward currently eating cheese and yogurt. See picture below