Another day

Well another day another walk , we took Edward on his 2nd walk today and when we returned home we hopped in the car with him and drove over to the NICU (don't worry we didn't go in or even get out of the car) Dr. Lipsky was working (she was the doctor on when both boys were born and was also there the day William passed) she had not seen Edward since the middle of November, so she got to see how big he was and we had a nice chat with her. One of the best things that has come out of this NICU experience is all the life long friends we have made, people that we would have never known or talked to now are part of our and Edward's life forever!

Here is direct link to Edwards 1st month home movie

Just copy and paste into browser to play Enjoy!

Or just go to edwardday.com and click Edward 1st month tab across the top

http://web.me.com/august15/site/Edwards_1st_Month_Home.html

Edward takes a walk

Well we went to the doctor today and Edward is: Drum Roll Please!!!!!
Edward weighs 8 lbs 12 oz!!! Up another 9 oz in one week! Way to go!
The doctor also gave us permission to take Edward on his 1st walk outside, see the video and picture page on edwardday.com for full coverage of his 1st walk.
While you are at edwardday.com, you may want to look at the new page entitled Edward's 1st month home, I have created a video with music and pictures showing all the fun we have had during Edward's 1st month at home!
Also look for a new video tomorrow on edwardday.com entitled Edward's Journey through the NICU!!!

Everything ok with the heart

Well Edward was given a clean bill of health in terms of his heart, off to his regular doctor tomorrow (Thursday) for his weigh in and a more shots, and then and few days off before Edward heads back to the eye doctor on Tuesday and I head back to work after 1 month off :(
Boy am I going to miss Edward and Melissa when I back at work.

Good news on eyes

Well as you can read below, Edward's eyes are both showing improvement but we still have away to go before we can say we are "out of the woods".
After the doctor's appointment Edward and I watched Empire strikes back, and then Return of the Jedi. He really seemed to like them both .
Tomorrow we are off to the heart doctor for a follow up on his surgically closed PDA heart valve.

Eye update

Well the right eye finally is getting with the program, but we are not out of the woods yet, both eyes are now finally showing improvement , going back to see him in one week

Back to eye doctor tomorrow

Well back to the eye doctor we go, we are praying that his eyes improve on their own do he can avoid surgery. Look for an update around noon PST with the latest on his eyes. ( if nothing has been posted my noon PST that means he is having surgery).

Merry Xmas to all and to all a good night

Edward Xmas morning

He must have been a food boy this year

Twas the night before Xmas

Well
Edward is all snug in his bed, hoping that Santa Claus leaves him lots of good presents..

We took Edward back to the lights again tonight and he sleep again! We had to wait over a hour in the car just to see the lights. See below Edward sleeping in the car and some of the beautiful houses.
Merry Xmas to everyone for the Days!!

It is beginning to look like xmas

Well not too much new to report, Edward continues to do well. We took several Xmas pictures tonight here are a few , the rest can be found on the photo page of edwardday.com

Edward up again

Well went to Edward's regular doctor today and he said he looks great. Edward got 2 more shots in his legs, he has 2 more to get next week, boy I never realized how many shots kids get!
Edward weight today was up another 3 ounces putting him at 8 lbs 3 oz.
Time to rest and get ready for Xmas,. Edward must have been a really good boy this year, he must have at least 40 presents under the tree, oh boy we may have to add that addition onto the house after all, but not for Melissa's shoes. Instead we might have to add it for all of Edward's toy's and clothes !!!

8 pounds and growing

Today we saw Dr. T from the NICU and Edward's new weight is 8 pounds even and his new length is 19 1/4 inches!!! Go Edward go. Dr. T says Edward looks and sounds great . He said that if it was summer time then he would probably take Edward off oxygen but since we are in the "flu" season, he would like to keep it on until at least February, just as added insurance..
He says the only big thing we have left is the eyes, which we are working and and continue to pray and hope for the best .
After Edward and I got home we both took a nap in the living room, Melissa took a picture (see below).

Eye update

Left eye continues to get better
Right eye still border line. Doctor wants to give it one more week before he does laser surgery. Right now he would only do it to right eye. Left eye improving on its own.

Tuesday is a big day

Well we head back to the eye specialist again on Tuesday to see if his eyes are getting any better. I really hope that Edward does not lose his sight, because we want to be able to show him his older brother and tell him all about his incredible journey.
Look for an update around noon west coast time with a update on his eyes.
Oh we finally got the paid bill for the 2 helicopter rides that Edward took to LA in early September to fix his heart valve. Any guesses. (respond below to this blog in the comment section to make your guess) I will reveal the answer in a few days.
Wish us luck and keep us in your thoughts and prayers today
Thanks for everyone's help getting through this very difficult time. We can't wait for everyone to see and meet Edward!!!

Look at what Santa left us

Well we are just enjoying having Edward home. On Tuesday we have an eye follow up with still a high possibility of laser surgery. Then on Wednesday we go the NICU clinical follow up appointment and on Thursday we go back to the Edward's regular doctor for his 4 month wellness check. Lots to do this week, other than getting ready for Santa.

Edward continues to grow and eat

Sorry about no blog yesterday, I tell you one thing Edward is good at and that is eating. Boy can he ever eat. Oh and you want to hear a funny story, well if not stop reading...
Anyway yesterday while Melissa was changing Edward she forgot to
Cover up his you know what and well he got everything wet with his pee, including his bed, then during the next diaper change guess what we forgot to
Do again, you guested it, cover up
His you know what, and he did it again!! Boy does Edward produces lot of laundry...
We also decided tonight to take Edward over to Xmas tree lane in Lancaster, in he car so he could see
all the Xmas lights, and guess what he did the whole time, sleep!! (oh for those you know who don't know what xmas tree lane is, it is a group of houses in Lancaster that decorate there houses every year with lights, you can go on you tube and search for Xmas tree lane in Lancaster CA and you can see a video of the whole neighbor hood...
Oh well got to go.. Edward just decided to block the video camera for the baby monitor so I need to go unblock it..

4 months old

Well today Edward turned 4 months old and so would have William . Boy does time fly, I can't believe that just 4 short. Months ago both of the boys were born, mommy and daddy love you both so much.
Edward had a special visitor today's grandma Campbell got to see Edward for the first time since he was in the NICU, and he sure did love any minute of it.
Today Melissa and I put our tree, and Edward just looked at us wondering what this thing was that we were putting up in his house....

Eye Update

Leg eye is showing signs of improvement and right eye about the same. We are not out of the woods yet. At least they didn't get any worse.

New weigh in and Santa's little helper

Well Edward gained 7oz from his last weigh in, which puts him at 7lbs 7oz. He also gained about 1/2 inch in his length... Go Edward Go
Tomorrow is the big day with his eyes, we should know of they are getting better or if he will need to have laser surgery or not, so please keep is in your thoughts.
Below is Edward dressed up as Santa's little helper

Continue to enjoy having Edward home

Well we continue to enjoy having Edward just 2 feet away instead of 1/2 mile away, and we continue to wait on egg shells for our next eye appointment on Wednesday...
On a lighter note, Edward has a new trick, he actually cries when he is hungry, well during the day , he actually ,if he had it his way, would get a bottle about once a hour throughout the day and sleep through the night , boy is he ever hard to wake up for his night time feeding, he must get that from his dad!
Boy can he ever eat, tonight at 9pm he took his whole bottle in 10 minutes, no joke.
Tomorrow we go back to the pediatrician for a follow up, he wants to see Edward once a week for awhile.
Edward turns 4 months old on Thursday, boy were has the time gone?

The waiting game begins

Well Melissa and I are trying to enjoy our time with each other and Edward while we wait to see the verdict on his eyes, which we should know on Wednesday when we go back to the eye specialist. Thank you to everyone's continued positive thoughts and prayers we need all the strength we can get.
On a lighter note, Edward watch some football with Daddy today. (see picture below)

Not very good news today

Well the retinal specialist we saw today told us Edward has a stage 3 of 4 irregular blood vessel growth in both eyes, which means if it is not treated there is a 40% chance that Edward could go blind , but if laser surgery is required, which the doctor is not ready to call for yet (we have to go back on Wednesday) their is still a 20 % chance or 1 in 5 that Edward could still go blind. I wish this roller coaster ride would end already and we could enjoy being parents without all this medical stress....

Roller coaster ride continues

Will we thought the roller coaster ride was over, however not quite yet.
Today Edward had a routine eye exam and during the exam the doctor noticed that Edward's eyes were has he put it "different from the last time he saw him" ie worse, and wants us to go see a renal specialist from Beverly Hills tomorrow (Saturday). We are not exactly sure what any of this means, we are hoping to get some clarity tomorrow, so we know how bad they are and what they can do , we hope something can be done so Edward does not lose his ability to see us.
Why in the world can't ANYTHING go right for us!!!! Someday we are going to have a heck of a story to tell Edward about his first few years of life and hopefully he will be able to read for himself the journal that Melissa has been keeping.
Also I want to apology to nurse Kim, who I forgot to mention in the blog yesterday, came over to our house to watch Edward so both Melissa and I could run out to Sam's Club for some groceries. Thanks so much....
Well keep your fingers and toes crossed and the positive thoughts coming... We need them ALL