Today Edward had a routine eye exam and during the exam the doctor noticed that Edward's eyes were has he put it "different from the last time he saw him" ie worse, and wants us to go see a renal specialist from Beverly Hills tomorrow (Saturday). We are not exactly sure what any of this means, we are hoping to get some clarity tomorrow, so we know how bad they are and what they can do , we hope something can be done so Edward does not lose his ability to see us.
Why in the world can't ANYTHING go right for us!!!! Someday we are going to have a heck of a story to tell Edward about his first few years of life and hopefully he will be able to read for himself the journal that Melissa has been keeping.
Also I want to apology to nurse Kim, who I forgot to mention in the blog yesterday, came over to our house to watch Edward so both Melissa and I could run out to Sam's Club for some groceries. Thanks so much....
Well keep your fingers and toes crossed and the positive thoughts coming... We need them ALL
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